Friday, May 20, 2016

2016 Diabetes Blog Week: The Healthcare Experience


Most people who live with a chronic illness end up with a lot of experience when it comes to dealing with healthcare.  How would you improve or change your healthcare experience?  What would you like to see happening during medical visits with your healthcare team?  How about when dealing with your health insurance companies?  What's your Healthcare Wish List or Biggest Frustration?  Today is the day to share it all.

(Yes.. this prompt was supposed to be yesterday's but life got hectic and I didn't get anything written.  My goal is to catch up by tonight.  We'll call it #BlogGoals.)

This is a LOADED question and I'm sure many have sounded off on insurance issues, physicians not listening issues, being rushed issues, and a number of other issues that just add to the frustration of living with a basically invisible disease.

How would I improve my healthcare experience?  Other than not having to go ALL THE TIME, I would like to see more personal interaction.  My endo's office is the perfect example.  They all know me there... true, I'm there every three months for an appointment, and additionally once a month for our local networking group, but still.  I feel welcomed, at home, and totally heard on everything.  My doctor, herself, is always checking on me.  Her first question each time is "How are YOU doing?".  She doesn't ask about numbers, or insulin, or test strips, or anything traditionally diabetes related.  She asks about ME.  If there is even the slightest "eh" in my voice she puts everything down and we talk first.  THAT, in and of itself, is huge in my book.  It reminds me that I'm still human.  I'm still a person.  I'm not a disease.

Dealing with health insurance companies?  That is a headache and a half.  I've been blessed to have very good insurance coverage, but that doesn't mean there haven't been problems.  Some of the carries I've had people have had MAJOR issues with, but mine seem to minor when looked at in comparison.  I've had the "limiting test strips" battle and the "must switch insulin" battle.  I've dealt with having to switch supply companies because the one I loved wasn't on the preferred panel of my new insurance.  I've had supply companies be bought by someone else, and therefore their services and how they bill items change, which caused denials by my insurance.  That was a battle that thankfully ended in my favor and not out of my wallet.

My Healthcare Wish List:  my own parking spot (I'm there often enough), a prepaid Starbucks card for reward after my A1C is checked, and to be able to get what I need when I need it without any extra battles or exceptions.

Wednesday, May 18, 2016

2016 Diabetes Blog Week: Language and Diabetes


There is an old saying that states "Sticks and stones may break my bones, but words will never hurt me".  I'm willing to bet we've all disagreed with this at some point, and especially when it comes to diabetes.  Many advocate for the importance of using non-stigmatizing inclusive and non-judgmental language when speaking about or to people with diabetes.  For some, they don't care, others care passionately.  Where do you stand when it comes to "person with diabetes" versus "diabetic", or "checking" blood sugar versus "testing", or any of the tons of other examples?  Let's explore the power of words, but please remember to keep things respectful.

Words.

We have all been hurt by words and we have all hurt others with our words.

Words, and how we use them, are very important.

When I was growing up I was always reminded to say "Please" "Thank You" and "Excuse Me" or whatever other polite phrase was appropriate at the time.  I have raised my daughter to do the same, with a few  At meal times, especially when eating out or at someone's home, she learned to say "I'm not very fond of that" or "It's not my favourite" if there is a dish she didn't like.

Words can do a lot of harm.. and a lot of help.

Hearing someone call you and idiot or incompetent can lead to you doubting your own abilities or second guessing your choices.  However, hearing someone say "ME TOO" can heal so many wounds and remind you that you're not alone.

Labels can be just as bad...if you let them be.
I have diabetes.
I am a person with diabetes.
I am a diabetic.
Let's face it.. no matter how it is said it hurts.  It reminds me that a part of me doesn't work like it originally did.  A part of me broke another part of me.  I now have more check boxes to mark with each new doctor I see.  I see my doctors more often that I see many of my family (talk about things being upside down!).

For the most part, I'm okay with the above statements.  I'm not fond of any of them, but I understand that no matter how it is said the fact is that diabetes is a part of my life forever remains.  I will continue to care for myself and educate those around me and not concern myself too much with wording..until there is a cure.  Then I will INSIST on these words instead:
I HAD diabetes.
I am a person who HAD diabetes.
I WAS diabetic. 
Those are the words I can't wait to hear.