One thing I know about life is that we are all dealt a hand that we don't always like. There are days when it would be easier to throw all the cards away and ask for new ones. Then there are days that we look at what we have and couldn't be more thankful.
Living with Type 1 diabetes is exactly that. Some days the cards are different and some days the cards are the same, but the outcome can be different.
Another thing I know is that if you look around you will always find someone who inspires you. Katie is one of those people for me. I met her a few years ago through my daughter. They went to the same high school. In fact, Katie's dad was the commander of my daughter's JROTC class.
Confession time: When I first saw Katie I noticed she looked different, but I also noticed that it didn't slow her down.. I didn't know what had caused her physical difference, but I learned. Katie has Treacher Collins Syndrome. Here is a description of what Treacher Collins Syndrome is.
Over the last couple years Katie has been through more surgeries than I can count (somewhere upwards of 30+ if I remember correctly). I've kept up on them the best I could and have been amazed at her positive attitude and strength. It has truly inspired me.
Now I don't know about you guys, but before Katie I had never heard of Treacher Collins Syndrome, have you? I know she would love to spread awareness for TCS. I hope that this post has done just a little bit of that.
Tuesday, July 9, 2013
Tuesday, July 2, 2013
Twice in one month
I should have known better. After all, I dealt with hot insulin once this month already. But no.. I have a thick skull.
This past weekend, and through this week, my area of the world has been super hot. I know there are other areas that are a lot hotter than here, Phoenix for example. Yes.. yes.. "it's a dry heat". I will agree that dry and hot is better than humid and hot, but 115 is hot no matter how you look at it.
Saturday morning, while getting ready for the day, I debated preparing my Frio pouch for my insulin pump. I knew I would be in and out of buildings, but figured I would be fine.
My post church lunch was delayed due to an extra sermon (very good sermon..totally worth the extended time), so instead of eating at the park with friends my hubby and I stopped by my office to eat. It was already hot outside, and I figured the coolness of my office would be good. We ate a quick lunch, and headed to a funeral for the dad of a dear friend.
The service was good, hugs were given, and tears were shed, then we were off to the cemetery. This dear gentleman had served in the Army during the Korean war and therefore had a full military burial. I truly felt for the honor guard as they were in full uniform. Those uniforms are not cool by any means. Talking with one of them afterwards I found out that ours was their third of the day.
The graveside service took maybe 15-20 minutes. There was a little bit of wait time, but not bad. All in all, I was outside for maybe 30 minutes. I made sure my pump was on my shaded side, and kept it covered with my clothes. When we got back in our car I checked my CGM and noticed I was climbing, two arrows straight up. That's when I knew I should have brought, and used, my Frio. We went back to my office for me to switch out everything. Thank heavens for spare supplies at work, right? I corrected, even with a syringe, and it still took a few hours to come back down.
This past weekend, and through this week, my area of the world has been super hot. I know there are other areas that are a lot hotter than here, Phoenix for example. Yes.. yes.. "it's a dry heat". I will agree that dry and hot is better than humid and hot, but 115 is hot no matter how you look at it.
![]() |
| This was taken at about 4pm |
Saturday morning, while getting ready for the day, I debated preparing my Frio pouch for my insulin pump. I knew I would be in and out of buildings, but figured I would be fine.
My post church lunch was delayed due to an extra sermon (very good sermon..totally worth the extended time), so instead of eating at the park with friends my hubby and I stopped by my office to eat. It was already hot outside, and I figured the coolness of my office would be good. We ate a quick lunch, and headed to a funeral for the dad of a dear friend.
The service was good, hugs were given, and tears were shed, then we were off to the cemetery. This dear gentleman had served in the Army during the Korean war and therefore had a full military burial. I truly felt for the honor guard as they were in full uniform. Those uniforms are not cool by any means. Talking with one of them afterwards I found out that ours was their third of the day.
The graveside service took maybe 15-20 minutes. There was a little bit of wait time, but not bad. All in all, I was outside for maybe 30 minutes. I made sure my pump was on my shaded side, and kept it covered with my clothes. When we got back in our car I checked my CGM and noticed I was climbing, two arrows straight up. That's when I knew I should have brought, and used, my Frio. We went back to my office for me to switch out everything. Thank heavens for spare supplies at work, right? I corrected, even with a syringe, and it still took a few hours to come back down.
![]() |
| Yup.. it was a rough day. |
Needless to say, I've been using my Frio every day since. It is a little bulky, but workable... especially when compared to cooking insulin.
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